Two Steps Forward...One Back

We've made some really great progress with Brady's swallowing over the last week. Such great progress that as of now (knock on wood) no scope or surgery seems to be needed to correct it. It seems perhaps Brady has just been slow to outgrow it. I'm really grateful for Brady's pulmonologist that really believed in his heart of hearts Brady would outgrow it and kept putting off the scope. Although, I guess the downside to that news is, one, he won't already be put under anesthesia so we can't coordinate surgery for the three hernias he has to be done simultaneously. I was hoping we'd have the opportunity to fix those before Brady is at the age to remember. But, for now I'm going to be thankful for no procedures and no surgeries. And the other downside I guess if you want to call it that is we're back to the drawing board with Brady's other stuff.
The first relatively minor issue... the thickener aside from serving as an aid to swallow correctly apparently is also an aid with reflux. Brady has been off his reflux meds for months now, but with the thickener out of the picture since Friday, reflux has reared its ugly head. Back to the meds, hopefully temporarily.
The bigger issue that WONT GO AWAY...So in June Brady had made a steep (for him) climb on his growth curve and both me and Brady's two specialists were all doing the jig. Finally, we thought, Brady is perhaps on his way... Perhaps all he needed was to stay away from illnesses and have the opportunity to thrive. However, we found out at this morning's pulmonologist appointment, Brady has not gained any weight from beginning of June until end of August. *cue my heart sinking* Pulmonologist was pretty concerned, puzzled, etc etc over the no weight gain thing. Brady got three vials of blood taken this morning *cue my heart breaking* to see if any red flags surface that could maybe, possibly, explain what's going on.
Now more waiting. Something I'm used to but still not great at.